This is a static copy of In the Rose Garden, which existed as the center of the western Utena fandom for years. Enjoy. :)
Remembering some enlightening and comforting discussions I'd had previously with some of you, I decided to take the plunge and ask: do any of you live with health problems of any sort? If so, what are your techniques for coping with them? This is ONLY if you feel comfortable talking about it, mind you.
My own way-too-long list reads as follows:
- Epilepsy. Stupid fucking seizures, ruining Spiderman 3 on opening night for me --; My main triggers are low blood sugar and high-pitched, repetetive sounds, such as car or fire alarms. I manage these through a combination of meds, eating when I'm supposed to, and high-quality noise-cancelling headphones and my iPod whenever I leave the house.
- Polycystic Ovary Syndrome. This is the condition that led to my recent surgery. Basically, it's exactly what it sounds like. I develop multiple cysts on my ovaries (along with unwanted facial hair, extremely heavy, painful periods that don't come when they're supposed to, and blood sugar problems), some of which can grow to very large size. In my case, I ended up with a cyst roughly the size of a grapefruit, which caused my right ovary to twist on its ligament and cut off blood supply, thus necessitating the removal of said ovary. This was the absolute most painful experience of my life. The max dose of Dilaudid barely took the edge off before the surgery. I *begged* the surgeon to take the rest of my reproductive system with it, but he wouldn't listen. Of course, any guy in the world can get a vasectomy any time he damn well wants, but it's worth your life to find a doctor who'll even tie your tubes before the age of 40 if you're a woman. I'm a goddamned adult, high-functioning autism notwithstanding, I'm perfectly intelligent, and I'm capable of choosing what I want done with body parts that don't work anyway and cause me nothing but pain. [/rant]
- Complete and utter inability to get any sleep at any time, EVER. I went to a sleep specialist and came back with three separate diagnoses, none of which they seem to be able to do anything about. It's this more than anything else that really makes me miserable. Everything else I can pretty well deal with, because my meds at least MOSTLY work. But when you live on 3 hours a night, day after day after day, it starts to wear on you. Mostly I deal with it by reading, writing, movies, sewing...and staying up on the interwebs all night. Losing said internets almost led me to a nervous breakdown. Pretty pathetic, but what can I say, I'm an addict.
I take a heavy handful of pills four times a day, every day. They each have their own side effects that I ALSO have to deal with. I'd give anything to be free of all of this.
How do you deal?
- Leah, who asks forgiveness for her sudden attack of whiny melancholy.
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*gives the fairy of expositions hugs and cookies*
I think I was in a thread with you before about how some fabrics and textures feels like its splintering off into our skin. X____x
I have CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome). It's supposedly like having the flu for eternity, no energy making me the defintion of lazy. (I've never had the flu, so I can't say if that's really what its like...) I get every sickness that goes around, I can't be near loud noises, strong smells or too much light or I get instant headache and pain. X___x I have about one splitting headache a day, which wouldn't be half as bad if it weren't for my allergies to most painkillers. My roommate says I'm like a vampire, but didn't get all the vampire powers stuff. (except I'm rather strong she says...) I just want a doctor's note that says I'm clinically lazy D:
I also have some heart problems, but honestly have no idea what they are. And honestly, I dont' care anymore. They've tested so many things, given medicine. They were leaning towards it filling with fluid last.
I also got to have horrible depression problems, and sleep. For which, I almost ALWAYS get in fights with doctors with. I don't want to take sleep medicine as chances medicine will do something horrible to me are VERY high, and I'd be asleep and would have no idea. I've also completely lost people in the family I live with, and my one real family member because of medicine for depression (and other mental disorders.) They're COMPLETELY different people now and haven't been since they took them. I'm stubborn to begin with, and that killed all chances of it for me.
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ExpositionFairy wrote:
I *begged* the surgeon to take the rest of my reproductive system with it, but he wouldn't listen
Yeah, I mentioned it to mine and he looked at me almost like he thought it would be his ass if he did such a thing. The way I see it, if you tie your tubes and aren't motivated enough to undo the operation to have a kid, you don't want it anyway, save your money. I'm sorry things were so hard for you, my operation went much easier. Hopefully the worst is over now and you can look at treating the problem instead of cleaning a mess. :hug:
As for my health problems, none of them are major, they're mostly little nagging ones. I do have the inclination toward getting cysts, but the doctor didn't seem to think it was POS, so I'm on birth control now which will supposedly stop it. I have problems breathing, and pretty severe allergies, but I take meds for those too. I also apparently have low blood sugar, hypoglycemia, but that's undiagnosed, it just showed in the bloodwork for my operation. It might explain the pretty god damn constant fatigue.
Most of my physical problems are related to stress. I'm an anxious and rather neurotic person, and my stress level will show on my body in a variety of unpleasant ways.
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ExpositionFairy wrote:
BODY BEING TEH SUCK
...damn, that's horrible. Is it possible that your meds are making the sleep problem worse, though? I couldn't hazard a real guess without knowing exactly what it was you were taking, but I wouldn't think it terribly unusual for antiepileptics to cause that kind of problem (although I hear the opposite effect more than wakefulness). If you're taking something like metformin for your PCOS it's possible that could affect your energy levels too, although like I said, without knowing what you were taking I couldn't say. And I certainly wouldn't recommend stopping or adjusting them without speaking to your GP and/or specialists anyway, although in my experience if you have several doctors working with you that can be half the problem. They don't necessarily consult with each other well, and sometimes the prescribed meds conflict a bit and no-one ever does anything about altering it.
And if you're wondering where I am coming from on all this, I'm a practising pharmacist. Have been for a couple of years now, God forbid.
I myself have something my doctor strongly suspects to be Ménière's disease, although I don't generally have a problem with hearing loss (and when my hearing goes wacky, it's usually because I've had my iPod on too long...). I take meds off and on for it, and try to avoid situations that stress me out because they worsen the whole thing infinitely. However, given my occupation and temper, it never works for long. I probably have a mild form of PCOS too, actually, but I don't get the symptoms badly enough to want to do anything about it. Which I may regret later. Dammit.
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